Managing a child with a Congenital Heart Defect is stressful enough, mix in Learning Disabilities & Developmental Delays and you have a recipe for confusion. These concerns must be addressed and we hope the information we have provided will assist you obtaining the life skills your child deserves.
Developmental Milestones
NCBDDD, CDC – Learn the Signs, Act Early
First Signs – First Signs is dedicated to the early identification of and intervention for children with autism and other related disorders.
American Academy of Pediatrics – Committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
Autism Speaks – At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.
Child Care Aware – Show Them The Moves: Get Your Children Active For Life
Education
Individualized Education Program (IEP) – The purpose of this guidance is to assist educators, parents, and state and local educational agencies in implementing the requirements of Part B of the Individuals with Disabilities Education Act (IDEA) regarding Individualized Education Programs (IEPs) for children with disabilities, including preschool-aged children. (This guide does not address the development of Individualized Family Service Plans (IFSP) for infants and toddlers.)
U.S. Department of Education
IEP Guide
Understanding a Section 504 Plan – The “504″ in “504 plan” refers to Section 504 of the Rehabilitation Act and the Americans with Disabilities Act, which specifies that no one with a disability can be excluded from participating in federally funded programs or activities, including elementary, secondary or postsecondary schooling. “Disability” in this context refers to a “physical or mental impairment which substantially limits one or more major life activities.” This can include physical impairments; illnesses or injuries; communicable diseases; chronic conditions like asthma, allergies and diabetes; and learning problems. A 504 plan spells out the modifications and accommodations that will be needed for these students to have an opportunity perform at the same level as their peers, and might include such things as wheelchair ramps, blood sugar monitoring, an extra set of textbooks, a peanut-free lunch environment, home instruction, or a tape recorder or keyboard for taking notes.
“Preparing the School for Your child with a Congenital Heart Defect“
Are 504 plans really necessary?
How do I get a 504 plan for my child?
How does a 504 plan differ from an IEP?
Sample 504 Plan
Mental Well-Being
The National Child Traumatic Stress Network: Medical Trauma – The mission of the National Child Traumatic Stress Network is to raise the standard of care and improve access for services to traumatized children, their families and communities throughout the United States.
Other Resources
A Guide to Disability Right Laws
U.S. Department of Health and Human Services – Office on Disability
DisabilityInfo.gov – provides quick and easy access to comprehensive information about disability programs, services, laws and benefits. You can begin your search by visiting any of the nine subject areas at the top of this page. To find disability resources in your state just click on the Find State and Local Resources map located in each of these subject areas.
IDEA – The Individuals with Disabilities Education Act (IDEA) is a law ensuring services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education and related services to more than 6.5 million eligible infants, toddlers, children and youth with disabilities.
National Center on Birth Defects and Developmental Disabilities (NCBDDD) – Kids’ Quest On Disability and Health: Through our Web Quest we will become “virtual investigators.” We will search for information by exploring not only the Internet but also our own school and neighborhood. Quests are a lot of fun, so let’s get started.
Your State Agency Responsible for Child Care Assistance
Finding Help Paying For Child Care
Child Care Aware – America’s most trusted child care resource.
