Resources
We work diligently to provide resources online so your job as a parent can be spent loving your child. If you ever come across a resource you feel would be useful to other parents, please email us info@itsmyheart.org with suggestions and comments.
| Books For Parents, For Children, Books for Families about Children with Disabilities |
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| Compounding Pharmacies A list of pharmacies in each state that provide compounded prescriptions. |
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| It’s My Heart Publications These forms, brochures and posters are meant to make life less stressful and to help you to be a better advocate. |
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| Heart Camps A list of camps for children with congenital heart defects. |
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| Fun Opportunities A list of fun activities provided by other organizations for disabled children and their families. |
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| Cardiac Hospitals A list of Cardiac Care Hospitals by state. Hospitalization Patient Rights, Things to Bring, Child Life Healthcare Accreditation Colloquium The Colloquium is the only accrediting body that covers the entire continuum of heart care. |
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| Insurance Often times our children’s insurance is not adequate enough or are not approved due to pre-existing health conditions which can leave us to feel uncertain about their future. We have compiled a list of options through government programs and individual insurance to assist and offer hope for your child’s well-being. |
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| Medicine Administering medicine is not always easy, especially when it’s part of every day life. We have compiled informational sites on the different drugs and their effects, tips and tricks. We hope you find this helpful in navigating CHD. |
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| Life Skills Managing a child with a Congenital Heart Defect is stressful enough, mix in Learning Disabilities & Developmental Delays and you have a recipe for confusion. These concerns must be addressed and we hope the information we have provided will assist you obtaining the life skills your child deserves. |
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| Flight Assistance A list of airlines and non-profit organizations that provide flight support for medical transportation. |
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