Submit Story Form
cforms contact form by delicious:days
Story Guidelines
There is no age limit and we want to hear from you whether the person with the Congenital Heart Defect is alive or deceased. It’s just as important to hear from grandma, grandpa, aunt, uncle, cousin, sibling, friend or whomever would be willing to write. Please highlight experiences that have been challenging and how this has affected your life. Many do not understand the seriousness, lifelong affect and financial devastation a Congenital Heart Defect creates on everyone involved. It is also important to include any other medical issues, learning disabilities and delays and emotional/mental toll it takes on those involved. Please understand that stories may be edited and may or may not be used for Lobby Day due to limitation of space/finances. Please help us to tell your story.


Find information, personal stories, and resources.
Sharing our experiences with each other is an important way to connect and learn from other's experiences.

