Research Study Opportunities

In addition to supporting and advocating for families affected by Acquired and Congenital Heart Defects, It’s My Heart feels that it’s vital to support certain research projects related to Congenital Heart Defects. It’s My Heart recognizes that outside of the billions of dollars needed to make a difference, researchers are also in need of subjects (people). This means YOU can make a difference! Your help and participation is priceless and something money cannot buy. Without information from individuals affected by Congenital Heart Defects, researchers sometimes cannot move forward on current research projects or worse some research may not even begin. Please consider participating and keep checking back for updated projects that pertain to you. Not all projects require you live nearby, but they may or may not include a means for you to participate wherever you are.

We aim not to only notify people about certain research projects that they could be involved but also as a means for researchers to collaborate on certain projects.  There are times where researchers could be working on certain projects and not know that another researcher is working on a similar project in another state or country.  We hope this addition will aid all Congenital Heart Defect research by connecting those involved in medical research.

Do you know of a current research project and want to share? Click HERE to submit all the information for required approval and to be published on our website.

Researchers are always seeking volunteers to take part in current research studies. Listed below are currently available opportunities for participation. Visit the links below for further details.

Massachusetts

 

Where: Boston (will reimburse for travel)
Who: Fontan patients between 10-19 years old
Why: Brain Structure & Function After the Fontan Operation
When: Now

Brain Structure and Function
After the Fontan Operation

Michigan

 

Where: Worldwide
Who: Fontan Patients of any age, with or without Protein Losing Enteropathy (PLE) and Plastic Bronchitis (PB)
Why: We do not know exactly how or why PLE and PB occur. We believe that many factors may lead to PLE and PB and that the causes may vary some from one patient to the next. The key to treating these difficult but rare conditions will be to learn as much about them as we can from as many different patients as possible. We will try to find things that patients with these conditions have in common and determine what may be the most important areas for future research and for the development of new treatments.
When: Take the online survey NOW. This brief, one-time survey should take 5-10 minutes to complete. By completing this survey, you/your child will help us to gain valuable information about rare complications of the Fontan procedure and help future patients. We appreciate your/your child’s participation.
 
Visit the  University of Michigan C.S. Mott Children’s Hospital’s survey page for more details, or click HERE to go directly to survey.

The information posted on the It’s My Heart website includes hypertext links or pointers to information created and maintained by other public and/or private organizations. It’s My Heart does not endorse but provides these links and pointers solely for our users’ information and convenience. When users select a link to an outside web site, they are leaving the It’s My Heart site and are subject to the privacy limitations and policies of the owners/sponsors of that web site.

DID YOU KNOW?

Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined.

Yet funding for pediatric cancer research is 5 times higher than funding for Congenital Heart Defects.
MORE CHD FACTS
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