Tell Your Heart Story

Heart Stories Used to Make a Difference
We need your story accompanied by two photos. Family photos, individual photos of the person(s) with Congenital Heart Defects or hospital photos are all great examples. These stories will be used for important initiatives which will help carry out the mission to advocate for each and every one of you. Stories should highlight the overwhelming need for Congenital Heart Defects Research, a National Patient Registry, Congenital Heart Defects Education and Awareness.

Story Guidelines
There is no age limit and we want to hear from you whether the person with the Congenital Heart Defect is alive or deceased. It’s just as important to hear from grandma, grandpa, aunt, uncle, cousin, sibling, friend or whomever would be willing to write. Please highlight experiences that have been challenging and how this has affected your life. Many do not understand the seriousness, lifelong affect and financial devastation a Congenital Heart Defect creates on everyone involved. It is also important to include any other medical issues, learning disabilities and delays and emotional/mental toll it takes on those involved. Please understand that stories may be edited and may or may not be used for Lobby Day due to limitation of space/finances. Please help us to tell your story.

There are several ways to submit your story:

All heart stories must be accompanied by a privacy release agreement allowing the organization of choice to use your story and photos. If you have already submitted your story, please click on the Privacy Release button below to complete the privacy agreement only.