Advocacy

Advocacy: The active support of an idea or cause etc.; especially the act of pleading or arguing for something”.

If your child has surgery or treatment in a hospital, quite often you will see many IV’s and lines as a result. Be sure you know what everything is and why it is necessary. Have your nurse explain it to you and be sure they double check themselves. You are your child’s advocate.

Always know you have the right to ask questions of your doctor. It is their responsibility to make sure you understand and feel comfortable with the choices being made for your child. You are your child’s advocate.

It is our responsibility to get involved with our political leaders on both the local, state and national level. Let them know that you are their constituent and you have a voice in regards to legislation that affects you and your family. You are your child’s advocate.

We provide this link for you to click on and enter your home address to retrieve a list of your National Government officials and representatives. You are advocating for your child’s future.

We have created a Daily Progress Report which will enable you to stay on top of your child’s care during your Hospital stay. This is a vital tool which enables you, your child’s #1 Advocate, to stay on top of every aspect of Hospitalization. For example, think about a month down the road after discharge when you are trying to remember what happened on the day a certain medication caused your child to break out in a rash, all you have to do is consult the It’s My Heart Daily Progress Report you faithfully completed, and you have your hand written account of events at your fingertips.

Now more than ever with our taxpayer money being hotly contested for, Health Care Policy Reform and Research dollars for America’s #1 Birth Defect is going to be a hard fought fight. And we cannot be heard without you being our voice. Together we can Be the Difference for Congenital Heart Defects.

Now more than ever with our taxpayer money being hotly contested for, Health Care Policy Reform and Research dollars for America’s #1 Birth Defect is going to be a hard fought fight. And we cannot be heard without you being our voice. Together we can Be the Difference for Congenital Heart Defects.

As per the IRS: “Political activity. If any of the activities (whether or not substantial) of your organization consist of participating in, or intervening in, any political campaign on behalf of (or in opposition to) any candidate for public office, your organization will not qualify for tax-exempt status under section 501(c)(3). Such participation or intervention includes the publishing or distributing of statements.”

Therefore pleased be advised that the information contained herein cannot in any manner be misconstrued to be for or against any person running for public office anywhere in these United States of America.