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CHD Sites/Links

Articles of Interest

  • Pregnancy Today: Preparing for a Newborn with CHD
  • Pregnancy Today: Fetal Heart Development
  • LD Online: My Brother is Different – A short article dealing with learning disabilities and sibling relationships. The article discusses feeling of neglect, increased responsibility and guilt. Some suggestions are offered.
  • LD Online: Learning Disabilities and Sibling Issues

    • Information on Congenital Heart Defects

  • John’s Hopkins Children’s Hospital – Cove Point Foundation for Congenital Heart Disease
    Heart Anatomy & Anomaly Animated Diagrams ♥ Tests & Procedures ♥ Nutrition & Health Issues ♥ Adult Congenital Heart Disease
  • Kids Health from The Nemours Foundation – Congenital Heart Defects
    Animated Heart Diagrams ♥ Descriptions of Common Heart Defects ♥ Resources for Children and Teens
  • Heart Center Encyclopedia from Cincinnati Children’s Hospital
    The encyclopedia provides detailed information on many congenital heart defects, including, signs and symptoms, diagnoses and treatment options ♥ Info on Cardiac-Related Diagnostic Tests ♥ Flash Movies of Defects
  • The Children’s Heart Institute
    Patient Education ♥ Cardiac Medications ♥ Just For Kids ♥ Recent Advances
  • MedlinePlus and Congenital Heart Disease
  • AboutKidsHealth: About Heart Conditions
    Trusted answers from The Hospital for Sick Children Ontario, Canada



    • Treatment

  • Transcatheter closure of ASD and PDA



    • Quality of Life Issues

  • Children with Chronic Conditions
  • Pain and Your Baby
  • Pain and Your Child or Teen



    • Other Agencies & Foundations for Families with Pediatric Heart Disease

  • The Children’s Heart Foundation
    CHF has a parental resource book, It’s My Heart, that provides information on CHDs in layman’s terms.
  • The Congenital Heart Information Network
    A Portrait Gallery of Heart Stories Written by Parents ♥ Online Support Groups
  • PediHeart
  • Cardiac Arrhythmias Research and Education Foundation
  • Children’s Cardiomyopathy Foundation
  • Kawasaki Disease Foundation
  • Hypertrophic Cardiomyopathy Association
  • National Down Syndrome Society
  • National Marfan Foundation



    • Long QT Syndrome

  • SADS Foundation
  • Medication List



    • Information on research trials for children with heart disease

  • Pediatric Heart Network



    • Additional Links

  • Adult Congenital Heart Association
  • The Healthcare Accreditation Colloquium
    • It's My Heart Online Communities

    NOMINATE A NURSE

    “Day after day thousands of heart failure nurses attend to the needs of the millions of Americans with heart failure largely without recognition,” said Dr. Tony Joseph, President of the Colloquium. “This award recognizes the competency and skills of heart failure nurses by affirming their important role on the lives of those with heart failure.”

    Do you know a nurse that has made a significant impact on your life? Nominate them for the Heart Failure Nurse Recognition Award and honor their commitment to providing excellent heart care.
    NOMINATE NURSE

    DID YOU KNOW?

    Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined.

    Yet funding for pediatric cancer research is 5 times higher than funding for Congenital Heart Defects.
    MORE CHD FACTS

    FAMILY MATCHING

    Sharing our experiences with each other is an important way to connect and learn from other's experiences.
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