CHD in the News

Donate to Daniel Rickard
Daniel Rickard, parent of 7 year old Daniel who is in need of a heart and lung transplant. The family is in need of donations because the surgeries will be in St. Louis and the family lives in the Portland area. At any U.S. Bank donate to Account #153563317822 to help.

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Lars Larson on KXL Radio


New Heart Built with Stem Cells
Julianna Olsen of KARE 11
Minneapolis & St. Paul, Minnesota Reports

 

Mortality Rate Reporting for the Norwood Procedure in HLHS Patients
From Letter to the Editor in The Journal of Thoracic and Cardiovascular Surgery, September 2010Click here to read the letter.

 

Olympian Shaun White Interviewed
about his CHD at the Dew Tour in Portland
Made of five major events that take place over the course of five months, the Dew Tour is the first ever action sports tour running since 2005.Interview by: News Radio 750 KXL, Portland Oregon.

 

13 Days, The Short Life of Hazel Heidelberger
A 3-Part Series
A baby girl, born with a broken heart, gone too soon: Part One: The birth and baptism
The fight of her life: A young couple’s dream becomes a nightmare
A prayer vigil, tears and a tree: ‘All the strength I was trying to have for her, I just let it all go.’

 

BOSTONMED
An eight-part series inside three top hospitals – Massachusetts General, Bringham and Women’s & Children’s Hospital BostonRenee Peerless’s Story
Children’s Hospital Boston
Watch episodes every Thursday at 10 pm on ABC

 

Strong Families – Mending Hearts
June 2010 – On 0 to 5 in 30 Minutes
Fresno & Tulare County, CA
Finding out your child has a heart defect can be difficult. In many cases, it comes as a shock to parents. It’s a good idea to find support as you try to make sure your child receives proper care. It can be empowering for parents and caregivers.

Matters of the heart
Friday, May, 14, 2010 – By: Jo Colvin, Alexandria Echo Press
It’s a difficult thing for parents to go through – expecting a healthy baby, only to discover when the bundle of joy arrives that there are serious, and completely unexpected, complications. Four area families know only too well the heartache of having a child born with a congenital heart disease.

Moms Coming Together For Kids With Heart Defects
By Arezow Doost, DALLAS CBS 11 / TXA 21 (February 22, 2010)
With February dubbed ‘Heart Healthy Month,’ everyone is going red. Some North Texas moms are making sure one group that doesn’t really have its own voice is heard, children with heart disease.

Houston Run Raises Awareness For Heart Defects
By Rachel McNeill (February 4, 2010)

HOUSTON — One out of every 100 babies is born with a congenital heart defect, and many families don’t know about this potentially fatal condition until it strikes someone they love, KPRC Local 2 reported Thursday. Houston mom Corrie Stassen has made it her mission to change that.

Read more & watch the video segment . . .

Medtronic Valve Wins FDA Approval
By JENNIFER CORBETT DOOREN The Wall Street Journal Health (January 26, 2010)
The Food and Drug Administration Monday approved a Medtronic Inc. heart valve that can be implanted without open-heart surgery.

Sixth-graders’ heart screenings shock researchers
By CINDY GEORGE Copyright 2009 Houston Chronicle (Dec. 2, 2009)
Heart screenings offered to sixth-graders at a Houston middle school revealed seven with undiagnosed heart conditions— two of which required surgery — and the results shocked researchers who want to see such tests offered at every campus.

Environment plays role in hypoplastic left heart syndrome
The Medical News from www.News-Medical.net (March 30, 2009)
A congenital heart disease that often leads to death in newborns is significantly more common during the summer, leading researchers to believe that the environment, and not just genes that affect the heart, may play a role in causing “mini-epidemics” of this disease.

Lifewatch: Berlin Heart (WECT 6 Wilmington)
Adult heart failure patients in the United States can get heart pumps as they wait for an organ transplant, but helping children is more difficult.

Benefits Of ICDs In Children: Largest Study To Date (Medical News Today)
More and more children with congenital heart disease are receiving implantable cardioverter-defibrillators (ICDs) to maintain proper heart rhythm. ICDs were first introduced for adults in the 1980s, but little is known about how well they work in children, who account for less than 1 percent of recipients.

$11,000 more squeezed for heart (Toronto Star)
With donations of $79,630 to date, a 10-year-old Toronto girl – known for her little lemonade stand – closes in on her bid to raise $100,000 for heart and stroke research.

Lemonade with a lot of heart (Toronto Star)
With donations of $79,630 to date, a 10-year-old Toronto girl – known for her little lemonade stand – is closing in on her bid to raise $100,000 for heart and stroke research.

Sometimes I watch the television program “House,” and I am always amused when… (San Francisco Chronicle)
Sometimes I watch the television program “House,” and I am always amused when Dr. House barks, “Test for Whitsunday’s syndrome” or “It could be hydrotropic amanuensis. Take some spinal fluid.” The conditions mentioned are always wildly obscure. (Even though…

Phase 3 data Re: Anti-RSV antibody to be presented at Pediatric Academic Societies Annual Meeting (EurekAlert!)
HONOLULU, HI, May 4, 2008 – MedImmune today announced that researchers are currently presenting results from a MedImmune-sponsored Phase 3 study involving motavizumab, an investigational monoclonal antibody (MAb) that is being evaluated for its potential to prevent serious disease caused by respiratory syncytial virus (RSV) in high-risk pediatric patients.

Largest Study To Date Finds Benefits Of ICDs In Children (Science Daily)
More and more children with congenital heart disease are receiving implantable cardioverter-defibrillators to maintain proper heart rhythm. ICDs were first introduced for adults in the 1980s, but little is known about how well they work in children. Now, a report of the largest pediatric experience to date finds the devices to be life-saving, but also suggests that they tend to deliver more …

Largest Study to Date Finds ICDs Beneficial in Children, but Inappropriate Shocks Can Be a Problem (Newswise)
More and more children with congenital heart disease are receiving implantable cardioverter-defibrillators (ICDs) to maintain proper heart rhythm, but little is known about how well they work in children. Now, a report of the largest pediatric experience to date finds ICDs to be life-saving, but also that they tend to deliver more inappropriate shocks to children than to adults.

It's My Heart Online Communities

NOMINATE A NURSE

“Day after day thousands of heart failure nurses attend to the needs of the millions of Americans with heart failure largely without recognition,” said Dr. Tony Joseph, President of the Colloquium. “This award recognizes the competency and skills of heart failure nurses by affirming their important role on the lives of those with heart failure.”

Do you know a nurse that has made a significant impact on your life? Nominate them for the Heart Failure Nurse Recognition Award and honor their commitment to providing excellent heart care.
NOMINATE NURSE

DID YOU KNOW?

Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined.

Yet funding for pediatric cancer research is 5 times higher than funding for Congenital Heart Defects.
MORE CHD FACTS

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